Good Morning

Chug down some pills and a gatorade, it's a new day. Get up slowly and have a nice cup of decaf soy coffee....silk creamer is my new best friend. Let's step up and do something today. Make the world a little bit better. Make a new friend. Call your grandma. Invite a neighbor in for lemonade. Play a video game with the kids. Draw a picture. Take a few minutes out of your day and show someone you love that you love and appreciate them.

To All of You Out There Suffering

I just want to tell you that you are strong. More than many out there realize. Throughout the pain and exhaustion. Nausea and vomiting. Passing out and migranes. You keep pushing through. All the sufferin makes you stronger. Just remember to keep fighting. I know sometimes it feels like we are all guinea pigs to the medical world. Poked and tested. Popping pills and er visits but we still keep going with smiles on our faces hoping one day it will all be worth it. One day the world will hear or plea. Dysautonomia will be known and a cure will be found. Until then keep your chins high and remember we are all here for a reason. Don't give up on yours.

Faith vs. Denial

Let me just say I am all for faith. I pray everyday for the protection of those I love and that good days will come to those of us suffering. However one thing I am not for is denial. I live in a realistic way. I know I am sick and I know the approximate prognosis for me at this time. I do not live in a fantasy world and believe that one day I will just wake up and be fine. I keep with treatments and know how to handle myself. I do not consider this to be negative. I have just been disappointed an have come to realize that you cannot always expect a miracle. They come. I believe whole heartidly that there are miracles everywhere but I do not think if I live in denial I will feel better. I came out long ago so I would not have to live a lie and I refuse to pretend I am healthy as well. I have my good days and bad days like everyone else. So for me. Please do not tell me I am not sick. That I can be saved. I respect that you are trying to help but trust me. I research. I pray. I am looking for a cure. Thank you.

Sneaky sneaky

With my years as a dysie...sort for dysautonomic...I have learned a few tricks Number one: SLOW DOWN. If you try to rush yourself you will burn out. Then your whole day will be screwed. Number two: Hydrate. Very big factor. Raise blood volume. Cools you down and helps with nausea. I consider this a must. Number three: Snacks. We really do need to eat all the time. Whether your on a special high salt no dairy diet like me or if you are gluten free, we all need frequent small meals to keep going. Number four: Don't be afraid to ask for help. We already have enough to worry about. If you need help just ask. Everyone needs a hand now and again and it is always better than knocking yourself out to keep your pride. Trust me it is not worth it. Number 5: Figure out what works for you. We are all guinea pigs in treatments but who knows our bodies better than us? Keep notes of days you feel better and worse. Did you do something different? Eat too many glutens? Number six: Find an outlet. No matter if it is venting to fellow dysies, writing in a diary, drawing or whatever relieves the stress for you, you need a way to calm down and distract yourself from the stresses of life. Now more importantly you need to say positive and make sure to smile and laugh whenever possible. It can be rough sometimes but remember you are not alone. We are all here to help each otter and good days will come.