Tuesday, November 22, 2011

Long story short

It has been quite awhile since I last posted. Really I have barely been online at all. It has been quite a month or so with dysautonomia. The new doctor, Dr. Good, has changed my beta blockers and put me on mestonin. There are no major differences in my symptoms other than the first week or two I felt like I had the stomach flu. Talk about deep cleaning. Like with any chronically ill person I have been going through difficulties with my insurance, fighting over what is and is not covered and what is and is not medically necessary. Let's just say between the hours of phone calls and the multiple faxes and phone calls to even start getting my case looked at, insurance companies are not exactly friendly with me anymore. Social security is no better. They give you something like 300 dollars a month and expect you to live on that. Yeah right. Oh but then if you have no other income like me you get what they call SSI supplement security income. This is about another three hundred a month I you meet all of the needs as in pay for your own food. Don't really own anything of value. Pay for your housing. Ect. Then once you are on it they will use any excuse to try to take away either part of some of it depending on their excuse. Oh you got thirty bucks from a relative, that will come out of your pay next month. What? Really? If you want to get ahold of them you might as well rent a light show because it is no use. Hours on hold. Message left. Letters sent. Nothing. If they want to get ahold of you, now that's a whole different story. They send you a letter and within ten days or them writing it you need to either show up to their office or call them otherwise they take away your money for up ti six months. Great so now I have anxiety to try to even get ahold of them. Oh our wonderful system. Doctors. No use. They don't even know what to do. So now here we are, teaching ourselves through good old trial and error. New medicines: 2 New allergies: 2 New side effects: 4 New best friend: chocolate soy milk